By Kate Stone, Claire Tester, Joy Blakeney, Alex Howarth, Hether McAndrew, Nicola Traynor, Mary McCutcheon, Ruth Johnston
It is a useful advisor for Occupational Therapists and others who supply providers to those who have Duchenne muscular dystrophy. The objective of the booklet is to deepen the readers knowing of the help that occupational therapists can supply to households who're tormented by this situation. Written by means of skilled occupational therapists with a distinct curiosity in Duchenne muscular dystrophy. The ebook will offer details and aid to therapists who will be operating in isolation, or who not often paintings with this shopper crew. it truly is for the skilled therapist in addition to the coed. each one bankruptcy of this ebook provides a transparent and finished description of alternative points of occupational treatment checks and interventions.
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This can be a sensible consultant for Occupational Therapists and others who offer companies to those who have Duchenne muscular dystrophy. The aim of the publication is to deepen the readers figuring out of the help that occupational therapists can supply to households who're stricken by this situation. Written by means of skilled occupational therapists with a unique curiosity in Duchenne muscular dystrophy.
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Additional resources for Occupational Therapy and Duchenne Muscular Dystrophy
If the individual wears splints, ensure that these are not causing marking or chaffing of the skin. Providing advice on suitable but appropriate clothes and shoes for the individual can also reduce skin problems. Another area to watch for is skin breakdown on young men who wear masks on their face during ventilation. These can often cause skin problems. Advice on changing the individual’s position when seated in one chair or a bed for long periods of time will also help to prevent skin problems.
It is still being challenged, with men living into their forties in Scandinavia (Eagle, 2002). Such men are living independently, working, some married and some fathers. The overnight ventilation has been introduced over recent years and is not yet standard practice. However, many parents still understand their son’s prognosis to be in the teens and this belief shadows their lives. When working with a boy who has Duchenne muscular dystrophy and with his family, it is necessary to consider the emotional and psychosocial impact of the condition.
After discussion with the head occupational therapist, the therapist seeks supervision from a psychologist for her discussions with the mother, who is having real difficulties in coming to terms with the diagnosis, presenting as emotionally distraught. With the parents, the occupational therapist discusses their need for answers to questions that she is unable to answer. With their consent, she raises this with the general practitioner and the paediatrician, who invite the parents to contact and arrange an appointment to discuss their concerns with one of them.